tag:blogger.com,1999:blog-9218602897331908767.post1230222533310071374..comments2023-11-05T02:18:28.944-05:00Comments on Frontier Dreams: Horner's SyndromeFrontierDreamshttp://www.blogger.com/profile/03279174669401662612noreply@blogger.comBlogger85125tag:blogger.com,1999:blog-9218602897331908767.post-10765366445488412592013-12-11T14:50:08.460-05:002013-12-11T14:50:08.460-05:00Does anyone know if heterochromia is progressive d...Does anyone know if heterochromia is progressive due to horners syndrome. I amputated my arm 2 years ago as a result of a car accident. I had complete evulsion of my entire bracheplexus. They say that is the root of my horners syndrome. Will my eye continue to change color and lighten from brown to green?Anonymoushttps://www.blogger.com/profile/16026994070163662185noreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-14386054546876585322012-02-05T01:22:08.903-05:002012-02-05T01:22:08.903-05:00Anonymous - You are in the same spot we are. We s...Anonymous - You are in the same spot we are. We still do not know very much. He has had follow up appointments were they still barely tell us anything and just leave us with more unanswered questions. But the good news is that he is thriving and his droopy eyelid is becoming less and less obvious as he grows.<br />Sending hugs and support your way!!!FrontierDreamshttps://www.blogger.com/profile/03279174669401662612noreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-57266546426798775172012-01-26T22:05:19.937-05:002012-01-26T22:05:19.937-05:00I know I'm quite late on this, but my daughter...I know I'm quite late on this, but my daughter was also born with Horners Syndrome. I worried that it would affect her and her self esteem as she got older because it was so noticeable and i didn't want her to feel uncomfortable with herself. She's 5 now, and it has improved drastically on it's own. Unless she's really tired, you really can't tell. The pupil in the effected eye is quite a bit smaller and the iris slightly lighter in color than the other, but other than that you can barely tell. From what all of her doctors and specialists have told me, there's no serious need for concern..I just look at it as a unique characteristic that makes her her. I hope you guys made out well and that handsome little man is healthy and happy!! :)Amandahttps://www.blogger.com/profile/13791002776650854273noreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-30664595293116599542012-01-21T15:30:14.498-05:002012-01-21T15:30:14.498-05:00Hello Nicole. Our son is 6 months old and was jus...Hello Nicole. Our son is 6 months old and was just diagnosed with Horner's Syndrome. We have recently had the MRI and there were no signs of nerve damage, tumors, or neuroblastoma. Our pediactric opthamologist did not explain much about Horner's and we are still unsure what caused Horner's in our son. We continue to look for information online, but there is not a whole lot out there. Can you please provide an update on how your son is doing and any additional information that you have on Horner's Syndrome?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-60822866928261811762011-04-19T05:58:53.734-04:002011-04-19T05:58:53.734-04:00Hello!
I just stumbled upon your blog by Googling...Hello!<br /><br />I just stumbled upon your blog by Googling Horner's Syndrome Images and saw your sweet little boy's picture and clicked on it.<br /><br />Why did I do this?<br /><br />Because he looks like our little boy who was just diagnosed with it too... and I'm trying to learn all I can.<br /><br />The eye doctor just wrote orders for an MRI with sedation for our 7 month old and we need to wait 1-1/2 months for an appt... ARGH! Not all hospitals do this, as you well know... so we're hoping we can get in sooner.<br /><br />I didn't see a follow-up to your blog, but I will look again. I really want to know how your little one is doing and if they found a cause. Our doctor told us the majority of cases the cause is unknown... AND... in most cases it's simply cosmetic.<br /><br />I urge you to check YouTube as there is a very good video showing ptosis surgery (speeded up) which is something we'd consider before he goes into 1st grade.<br /><br />I wish you and your son all the best and will be reading your blog to see how you guys make out!<br /><br />EricAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-83399182534879539862011-04-16T16:47:34.906-04:002011-04-16T16:47:34.906-04:00i wish you strength and peace in such a difficult ...i wish you strength and peace in such a difficult time. may it surround you and lift you up. blessings, christinechristine ~ ourdayourjourneyhttps://www.blogger.com/profile/01066999830545686595noreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-2782563797645459652011-04-10T15:57:23.990-04:002011-04-10T15:57:23.990-04:00Oh, what a scary time.
I'm hoping that you hav...Oh, what a scary time.<br />I'm hoping that you have the results by now and that they were all good xxHannahhttps://www.blogger.com/profile/14556762165713581423noreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-84187947023210639622011-04-10T15:44:09.565-04:002011-04-10T15:44:09.565-04:00Sending you and your family lots of love. Ask Luci...Sending you and your family lots of love. Ask Lucian's angel for help too, always!<br />Luciana xhands follow hearthttps://www.blogger.com/profile/07859385171516960769noreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-21429006618064118342011-04-10T14:44:13.585-04:002011-04-10T14:44:13.585-04:00I send you a lot of love, strength and faith!I send you a lot of love, strength and faith!...https://www.blogger.com/profile/01581514678690676648noreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-14896554021277268862011-04-10T08:08:59.108-04:002011-04-10T08:08:59.108-04:00Thinking of you and your family during this time, ...Thinking of you and your family during this time, we went through a scary time with our then on month old number three. It was so difficult to face the unknown. Sending blessings and light to you precious little one.Mandihttp://mandi-timeflies.blogspot.com/noreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-51198592155735466722011-04-10T05:24:55.325-04:002011-04-10T05:24:55.325-04:00Much light and love for you and your family!Much light and love for you and your family!Mein Weghttps://www.blogger.com/profile/03959522471533432027noreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-59753383513750550392011-04-10T04:22:00.867-04:002011-04-10T04:22:00.867-04:00That's a lot to ask of either of you! My heart...That's a lot to ask of either of you! My heart goes out to you and your family, praying that you will find simple answers and peace about this!Koryhttps://www.blogger.com/profile/17622511779554270571noreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-16261241700952310222011-04-10T01:20:49.308-04:002011-04-10T01:20:49.308-04:00I hope you had good news from the MRI. Wishing yo...I hope you had good news from the MRI. Wishing you the very best.Anahttps://www.blogger.com/profile/15463687511235919362noreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-11824816659304339872011-04-09T23:10:14.538-04:002011-04-09T23:10:14.538-04:00Sending you lots of good thoughts!Sending you lots of good thoughts!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-55656116580667524612011-04-09T15:38:38.945-04:002011-04-09T15:38:38.945-04:00Oh, praying for baby L, you, and all your family! ...Oh, praying for baby L, you, and all your family! It is so scary when something -- anything -- goes wrong for our children. I know this from experience. Much love to you. xoxoxGracehttps://www.blogger.com/profile/05601835397311364086noreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-22461080690387282332011-04-09T11:18:14.596-04:002011-04-09T11:18:14.596-04:00Sending positive love and blessings your way...Sending positive love and blessings your way...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-26576673151234457652011-04-09T03:16:45.427-04:002011-04-09T03:16:45.427-04:00I wish all the best to you and your family and als...I wish all the best to you and your family and also my prayer from so far away (Austria) will be with you and you wonderful little guy. Thinking of you and your wonderful family. mariafrau kreativberghttps://www.blogger.com/profile/13209363145241180190noreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-34297319167396717362011-04-08T23:50:47.733-04:002011-04-08T23:50:47.733-04:00Oh, Nicole, how scary. Lucian is beautiful and I w...Oh, Nicole, how scary. Lucian is beautiful and I will keep all of you in my thoughts today and forward, as you unravel this together.<br />Warmly, NicolaNicolahttps://www.blogger.com/profile/02044553646998556989noreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-1184072171364814342011-04-08T22:07:07.263-04:002011-04-08T22:07:07.263-04:00What a beautiful, sweet-looking little boy, all th...What a beautiful, sweet-looking little boy, all the more cute looking, of course, swathed in handknits.<br /><br />I had a good friend in college with a droopy eyelid. I think she only mentioned it once or maybe twice. It didn't interfere with her sight, and, as for her appearance, she was never without some boys chasing her:)<br /><br />Hope all of your news is good!Carolinehttps://www.blogger.com/profile/02782876823581408975noreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-499093259630820142011-04-08T21:46:41.889-04:002011-04-08T21:46:41.889-04:00Oh Nicole, I am sorry that you all have to go thro...Oh Nicole, I am sorry that you all have to go through this! I am praying for your family and your little guy.<br />Sending you hugs and prayers!<br />Blessings,<br />MaggieMaggienoreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-86278567329733498162011-04-08T21:13:12.292-04:002011-04-08T21:13:12.292-04:00Have been praying for your little one and wishing ...Have been praying for your little one and wishing him health and blessings.Leighnoreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-75031397143968652002011-04-08T20:17:57.801-04:002011-04-08T20:17:57.801-04:00Nicole, I've heard back from my SIL, she said ...Nicole, I've heard back from my SIL, she said what her dd has is called Marcus Gunn Jaw Winking, it's a misdirected signal from the brain.. She's 7 now, and just got glasses to keep attention away from the droopiness, but it hasn't affected her at all. Sending you lots of positive thoughts, for sweet Lucien, and for you all!!Laurenhttp://www.raisingroots.com/blognoreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-88390809716838204632011-04-08T17:43:20.334-04:002011-04-08T17:43:20.334-04:00oh mama, my thoughts are with your family. BIG HUG...oh mama, my thoughts are with your family. BIG HUGS.erika~ the inspired mamahttps://www.blogger.com/profile/17284818917758089116noreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-64876574584796221322011-04-08T17:04:33.078-04:002011-04-08T17:04:33.078-04:00Praying for you and your little one for the very b...Praying for you and your little one for the very best outcome. It hurts us as mother's so deeply when things are unknown regarding our babies. Blessings to you all.jennhttp://jennbenn.wordpress.comnoreply@blogger.comtag:blogger.com,1999:blog-9218602897331908767.post-39912733642799420412011-04-08T16:47:22.621-04:002011-04-08T16:47:22.621-04:00Your son was born on my birthday. I also live in ...Your son was born on my birthday. I also live in Portland and am considering PWS for my daughter as well (she'll be 2 in July).<br /><br />I'm so sorry to learn about this new bump in the road for your family and wanted to let you know that you are in my thoughts.ryannoreply@blogger.com